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When a 17-Year-Old Girl is diagnosed with Myalgic Encephalomyelitis; A case-study from the Swedish health care system - a parent perspective.
Royal College of Music in Stockholm, Department of Music Education. Clinical Neuroscience Karolinska Institutet. (Bojner Horwitz)ORCID iD: 0000-0002-2377-1815
2022 (English)In: Clinical Medicine : Case Reports, ISSN 1178-6450, Vol. 11, no 8Article in journal (Refereed) Accepted
Abstract [en]

This case-study presents different strategies that were explored by the patient ́s mother (who is a researcher in music and medicine) when her 17-year-old daughter was diagnosed with ME (Myalgic Encephalomyelitis) – also known as Chronic Fatigue Syndrome (CFS). ME is not widely recognized in the Global as well as the Swedish population at large, and within healthcare there are no standardized recommended treatments, partly due to the lack of  published evidence-based studies. This case-study aims to provide insights into how the  Swedish healthcare system works, how different clinics and hospitals within it operate and interconnect; and how these contribute to health outcomes after 15 months of treatment.

Place, publisher, year, edition, pages
2022. Vol. 11, no 8
Keywords [en]
Case-study, Myalgic Encephalomyelitis, Parent perspective, Swedish health care
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:kmh:diva-4667OAI: oai:DiVA.org:kmh-4667DiVA, id: diva2:1684554
Available from: 2022-07-26 Created: 2022-07-26 Last updated: 2024-06-28Bibliographically approved

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CiteExportLink to record
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Citation style
  • apa
  • ieee
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  • de-DE
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Output format
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