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When a 17-Year-Old Girl is diagnosed with Myalgic Encephalomyelitis; A case-study from the Swedish health care system - a parent perspective.
Kungl. Musikhögskolan, Institutionen för musik, pedagogik och samhälle. Clinical Neuroscience Karolinska Institutet. (Bojner Horwitz)ORCID-id: 0000-0002-2377-1815
2022 (engelsk)Inngår i: Clinical Medicine : Case Reports, ISSN 1178-6450, Vol. 11, nr 8Artikkel i tidsskrift (Fagfellevurdert) Accepted
Abstract [en]

This case-study presents different strategies that were explored by the patient ́s mother (who is a researcher in music and medicine) when her 17-year-old daughter was diagnosed with ME (Myalgic Encephalomyelitis) – also known as Chronic Fatigue Syndrome (CFS). ME is not widely recognized in the Global as well as the Swedish population at large, and within healthcare there are no standardized recommended treatments, partly due to the lack of  published evidence-based studies. This case-study aims to provide insights into how the  Swedish healthcare system works, how different clinics and hospitals within it operate and interconnect; and how these contribute to health outcomes after 15 months of treatment.

sted, utgiver, år, opplag, sider
2022. Vol. 11, nr 8
Emneord [en]
Case-study, Myalgic Encephalomyelitis, Parent perspective, Swedish health care
HSV kategori
Identifikatorer
URN: urn:nbn:se:kmh:diva-4667OAI: oai:DiVA.org:kmh-4667DiVA, id: diva2:1684554
Tilgjengelig fra: 2022-07-26 Laget: 2022-07-26 Sist oppdatert: 2024-06-28bibliografisk kontrollert

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