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“It is more important than food sometimes”; Meanings and Functions of Music in the Lives of Autistic Adults Through a Hermeneutic-phenomenological Lens
Royal College of Music in Stockholm, Department of Music Education.ORCID iD: 0000-0002-2238-7889
Royal College of Music in Stockholm, Department of Music Education.ORCID iD: 0000-0002-2377-1815
2022 (English)In: Journal of autism and developmental disorders, ISSN 0162-3257, E-ISSN 1573-3432, Vol. 54, no 1, p. 366-378Article in journal (Refereed) Published
Abstract [en]

Subjective experiences of autistic adults remain under-researched, especially in the field of art. To learn more about their uses and functions of music, we interviewed 13 autistic adults and through a hermeneutic-phenomenological analysis found four overarching themes: Well-being, Identity and self-development, Connectedness, and Negative experiences. Findings show a broad and deep meaning of music in their lives, spanning from seemingly trivial functions such as making chores more enjoyable, to existential questions, such as choosing to stay alive. We discuss the often-overlooked negative effects or experiences of music, noting that positive and negative effects must always be addressed together if we are to use music to lower stress and support well-being.

Place, publisher, year, edition, pages
2022. Vol. 54, no 1, p. 366-378
Keywords [en]
Autism; hermeneutic phenomenology; music; negative experiences; subjective perspectives; well-being
National Category
Music Psychology
Identifiers
URN: urn:nbn:se:kmh:diva-5773DOI: 10.1007/s10803-022-05799-2OAI: oai:DiVA.org:kmh-5773DiVA, id: diva2:1951382
Funder
Karolinska InstituteKarolinska InstituteAvailable from: 2025-04-10 Created: 2025-04-10 Last updated: 2025-04-25Bibliographically approved
In thesis
1. The roles of music in the well-being of autistic adults
Open this publication in new window or tab >>The roles of music in the well-being of autistic adults
2024 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

While music-based support services have been widely implemented for autistic people, their subjective experiences with music remain underexplored. This thesis investigates the roles of music in the lives of autistic adults, emphasising its impact on well-being. Drawing on Self-Determination Theory (SDT), particularly the basic psychological needs for autonomy, relatedness, and competence, it aims to provide a framework for understanding both the positive and negative effects of music, thereby advancing research and informing future interventions.

The thesis consists of three empirical studies. The first two studies aimed to explore autistic people's musical experiences and establish a framework that could provide a theoretical common ground for the existing exploratory studies. Studies I and II involved in-depth interviews with 13 autistic adults (aged 24–69). In the first study, a bottom-up thematic analysis identified emergent themes, while the second study applied a top-down approach using predefined categories derived from SDT. The aim of the third study was to develop and test a questionnaire assessing how people engage with music to support their well-being. Using a mixed-methods design, we analysed the answers of 63 autistic adults who filled out our questionnaire, as well as gave qualitative feedback on how clear the items were and how well the items reflected their experiences of music and well-being. 

Findings show that autistic adults experience musicking as both beneficial and detrimental, depending on the context. SDT seems to be a promising theory for investigating the mentioned context, given how important a sense of self-determination is in music engagement. Furthermore, the thesis provides an example of how we can extend and adapt models and theories developed on the general population to its sub-populations and use them to create assessment tools. By integrating autistic perspectives into existing theories and models, such as SDT, this work calls for a more pluralistic approach to understanding music engagement, one that respects the heterogeneity of people and agency of individuals and actively considers the potential for harms and negative experiences.

Place, publisher, year, edition, pages
Stockholm: Karolinska Institutet, 2024. p. 108
Keywords
autism, music, musicking, well-being, self-determination, harm, negative effects, interview, questionnaire, neurodiversity, autonomy, relatedness, competence, adults, accessibility, representation, cultural citizenship, basic psychological needs
National Category
Health Sciences Psychology Music
Identifiers
urn:nbn:se:kmh:diva-5777 (URN)978-91-8017-792-4 (ISBN)
Public defence
2024-11-15, Nathan Milstein hall, Valhallavägen 105, Stockholm, 09:30 (English)
Opponent
Supervisors
Available from: 2025-04-29 Created: 2025-04-25 Last updated: 2025-04-29Bibliographically approved

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